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Blog Archives

Archive for the ‘gastroparesis’ Category

Megan and Gastroparesis Fight

Megan 2009

It’s 2010 and many are asking about Megan and how she is doing.  Here are the entries from her journey in 2009.  Again, my heart is amazed at how many people stepped up, encouaged, prayed and still to this day, ask me – how is Megan.  Lets journey back to November 2009.  Shall we? Love having you walk and talk with me.  It inspires me.

It’s November now.  Meg’s doing well.  Her stomach is working again, she is eating and digesting. It (her stomach) had stopped working completely.  No liquids, no solids – nothing would digest, everything would come back.  As bad as that was, as hard as that was, the worst part was that 2 doctors didn’t believe us.  2 doctors said, you are doing this to yourself.  Imagine, one Doctor, that has known her for her entire life, telling her that “if you’ll simply NOT throw up, your food will digest” or this is in your head…etc. etc. etc. Never had we had a problem with our pediatrician believing us, until this. Even though we told her doctor that she “held” her food in – YES – HELD in so she would not throw it up, for SEVEN hours on the fourth of July, sadly enough, he still didn’t believe us.  I could see it in his eyes.  I could see it all over his face.  He thinks she has been purging all these months. She has not. I am with her each time it happens.

Anyway – back to November.  She has been on medicine that cause her stomach to work, but at such a high price.  The pain it brings is horrid.  I see it all over her.  Every time I force her to take the meds, she has to endure pain so that her stomach will work.  I know there are so many parents who are going through so much worse with their children.  I simply can’t imagine some of the grief many parents go through day in and day out.  My heart goes out to you as you hold on to your precious child. As you journey through each day, one day at a time. As your heart is fearful of tomorrow.

I get a letter from a friend. One who is supporting Spreading Joy but feels like he needs to send an extra blessing along with the letter.  It says not to think, just go with the blessing.  I don’t have to think…I know what to do.  I want my princess to have peace in her stomach. I want her to smile again and be your normal, typical teenage girl.  I want her to have some good times of pure joy.

I don’t have Meg with me.  It’s Saturday night. I gaze at the letter. “All who touch it will receive a blessing. ” I want Meg to have it.  She needs to have this. She needs to smile, laugh and have a good time.  I contact Richard Mayhan, a fellow prayer warrior and friend who God has used to help round up prayer warriors on Meg’s behalf many times.  He knows that on Sunday afternoon, when we go to the altar and pray with Meg, we are praying for special healing and pure joy for her.  I take the letter to church on Sunday. I’m not at my own church because of a death in the family.  Many family members are there and I get separated from Steve and Meg.  I’m reading in my Bible in Matthew where the faith of the friends heal the sick.  I message that verse to Richard and he says that he is there, reading that as well and so is another person. To stay there, pray there – keep my faith right there.  That so far 10 people have agreed to pray with us when we go to the altar.  He is tweeting and asking who will pray.  I continue to pray that I would have enough faith. That I wouldn’t wouldn’t be the reason Meg misses out on a blessing of healing.  There’s 17 that have agreed to pray.  All I have to do is say when we are going to the altar and people all across the United States will pray at the exact same time. I sit in my pew in awe at the amazing friends I have, at the mighty God I serve.  Meg has struggled so much this year.  Her heart has hurt as badly as her stomach because we couldn’t get the doctors to believe us.  I hear back, 26 people are going to pray.  The service is almost ending.  My heart is racing as I hear 35 people are going to join us in prayer.   I give the word, we go to the altar – for a while we - Steve, Meg and myself are the only one’s praying.  WE don’t wait for the Pastor to invite us, no..we go.  Both Steve and I pray for our Princess.  Meg holds the letter. We ask for healing for her stomach as well as her heart.  We want her to be a happy normal teenager again. We get done, head back to our seats. I get the word that including Steve and myself 47 total people prayed at the same time for Megan. Amazing love for a little girl that they have not even met.

Now the faith begins.  We leave, go to lunch. I do not give the meds. She hates them. They hurt her so badly. She eats and the food stays. A week passes, two weeks passes. Still, food staying. No meds, no tears, no “but Mom”, no I need pain medicine. None of it.  I watch and laugh out loud - wow!! She is eating me out of house and home.  I’m giggling and thinking goodness….a few months ago I was forcing her to have milkshakes every day.  She says if she never has another milshake, it will be too soon.  4 weeks passes.  She is doing well. Eating. Gaining weight. While she doesn’t like it, I’m loving it.  Christmas Even rolls around.  The excitement of her brother being home, the festivities, the day itself. It gets to her and she is sick on her stomach.  Christmas day, she is sick for several hours.  Am I swayed – no.

Its now the END of January and Megan is doing well. No medicine and yet still digesting.  The Doctor had told us this was always going to be an issue.  That she would always have a problem.  And – maybe she will, who knows….but right now, as far as I believe, her stomach is working, on its own – thanks to My Lord.

Megan 2010

Oh, the wonderful friend that sent the blessing. He was part of the 47 that were praying for Meg, without knowing that I was using the blessing he sent. I had the honor of telling him sometime later that he was more instrumental than even he knew.  That was a great honor and joy.

If you have gastroparesis, we understand.  We believe you. We know how hard you struggle. Our prayers are with you. We will do all we can to help you walk down this path, and to have joy for your journey. WE will walk with you.

I love prayer warriors.  I love the faith of my friends.  I love how God gives us the desires of our heart. What is it that you need?  What are you praying for? We prayed all year long for Megan. Don’t give up.  Gather your friends and pray  – but don’t give up. Keep going before the Lord, don’t give up.  Keep asking, don’t give up.  Keep gathering with your friends and praying – but what ever you do…don’t give up…keep praying.

What do you need?

Thank you for your friendship, love and care for my princess! I’m blessed to have you in my life!

If you’re alone, I’ll be your shadow.  If you want to cry, I’ll be your shoulder.  If you want a hug, I’ll be your pillow.  If you need to be happy, I’ll be your smile.  But anytime you need a friend, I’ll just be me.  ~Author Unknown

Gastroparesis – Update

I realize that the “Spreading Joy Corporation” blog may not be the “best” place for these types of update – but if just one other person can relate to what Megan is going through and it helps them to find joy in their journey, then it is worth it to me. Besides, if we can’t talk about every step of our journey with friends, family, twitter friends and such – then who can we talk to them about? If you are here, you are at the very least a friend.

Here is the latest on Megan and where she stands.
The Doctors office did finally call and Megan did show some digestion on her scan this past Wednesday! Now, its not a lot, but it is a start.
He is going to continue her medication, deep relaxation and pain management techniques. The relaxation and pain mgmt is due to the fact she has been removed from ALL pain medications as they tend to relax her stomach and we need it to contract. Also – the insurance has denied the zophran – which helps to ease the nausea caused by the extremely strong antibiotic that she takes 3 times a day. They will not even approve 1 a day – only 24 for the month and she needs 3 a day. We are in “official” appeal mode but that could take a month.

She has also got to learn to “relax” (in a good way, not medicated) her stomach before eating so that it can do what it needs to do.

She has been eating a few ounces of pudding and yogurt and while it “hurts” her to eat it, she is keeping it down. She is now up to mashed potato type food for the next few days and then we can ease her into more of a solid after that continues to do well. Being the typical teenager that she is and the fact that she loves to eat, she really wants pizza. If she continues to keep down 2-3 ounces of mashed potato type soft solids, then we will get her a very small slice of pizza that she will take an hour to eat.

Jeff over at Bear 2 Care 2009 has issued his readers a challenge to stay away from pizza for 5 days to encourage Megan – to let her know that she is being thought of and prayed for and a time will come when she can have pizza again. It’s a goal to shoot for!

Her next appointment is Aug 26th and I am concerned that the pain of eating that has been there for 2 years is still there and wonder if/when it will ever go away…and if this wasn’t one of the “causes” to begin with. Also she will be starting school around that same time. Right now she lays down and completely relaxes 35 minutes prior to eating and will not be able to do that when school starts. We need wisdom and direction as to what to do for her for that.

Thank you for your prayers, tweets and emails of encouragement. You keep us going! My princess has such a long way to go, but I know she will be one amazing lady on the other side of this! She already is!

Photo: Megan playing w/statue at last Dr. Visit